Category Archives: Uncategorized

Playing my hand

The adventure of yesterday’s PET scan is behind us. It was a wild ride but I was able to have the scan and the MRI yesterday. I was more nervous worrying that the scan might have to be postponed than … Continue reading

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Bad attitude

OK, let me get this out of the way now. I am currently tired of people who tell me to have a positive attitude. Fuck that. I’m tired, and frustrated, and sick. Don’t tell me to have a positive attitude. … Continue reading

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A fall goeth before my pride

This week started with a fall. I was carrying some things into my shed last weekend. On the third and final trip, I slipped on the ramp coming out of the shed and fell hard on my butt. It’s my … Continue reading

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Discoordinated care

Let me just get it out of the way right now. I’m not happy with my care team today. In addition to having melanoma, and diabetes, and lately colitis, I’ve started having another issue. As you might recall from my … Continue reading

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Stop the Ride. We Wanna Get Off!

I never liked rollercoasters yet I went on them many times and each time I tried to like them. Maybe it was for the adventure or maybe to show myself they really were as fun as people I knew had … Continue reading

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That sinking feeling

As expected, it looks like I do have colitis and I am getting kicked off of Nivolumab treatment. The image on the left here represents my somewhat mixed thoughts. On the one hand, I feel like I have had my … Continue reading

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Why Ask Why

This post is more of a rant than anything else. I just need to get some stuff out and by writing it I’m hoping I will help get it off my chest. Also, if anyone else, who feels similar, happens … Continue reading

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Prednisolone, diabetes, and more crap

Well, I got the test results back from last weekend’s fecal adventures. Turns out that it’s not bacterial and its not a parasite, but I am positive for leukocytes. Without a CT scan or colonoscopy, it’s not 100% positive, but … Continue reading

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A shitty week

Warning: the following post contains references to poop, poop, and more poop. That’s just the kind of week that it was. I usually try to keep my posts here on the lighter side because I try to stay positive, and […] Continue reading

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Genuine Empathy

I have a lot of respect for people within the medical community who have knowledge and expertise in their field; however, there is something else that I believe is quite valuable to patients. That is genuine empathy. I have worked … Continue reading

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